Hello everyone,
Another Friday under our belts! We did it. I hated going under again, but it's done for another week. Phew! And the day is amazing so we're heading out!
I might've, maybe puked in the hospital hallway today. Was NOT funny at the time as mom was yelling for nurses, as Dad was gone for their Starbucks run. However, kind of funny now. Mom always gets puked on. Hee hee.. and she doesn't really seem to mind. Weird, I guess that's a mom thing???
Sending out a huge thank you. My friend Lucas, who is also only 5, rides BMX bikes. Lucas raised $2500 for leukemia research! He is riding in Kelowna June 7th and if you live there and are not busy please go support him. You can't miss him, his shirt says "Riding for Aiden!" And his beautiful mom, Ginger (Aiden likes to call her Gingerbread) will be the one holding the baby with wearing the same shirt. Lucas also gets to come here June 6th to hang out with me at Children's and we might be on TV!! Watch out Toby, I could be the next weather man! :)
So, big thanks to Lucas, high five buddy!!
It's a beautiful day, so we're grabbing the sunscreen and hitting Granville Island to feed the baby ducks. My blood will probably take a huge "dive" come Monday and I'll probably need ANOTHER blood transfusion.. however it's only Friday and we're going out while my counts are good!
Thanks to everyone who reads my blog, supports me and my family through all this. It's amazing and we love you all for it!!
xoxoxo
Aiden
Friday, May 29, 2009
Wednesday, May 27, 2009
May 27th
Another good one! What can I say, I think I'm on a roll!!
Went to school this morning and had a good time working on my numbers and playing with my friends outside. Dad picked me up from school and we went to Ronald McDonald house. I played with Curtis, played guitar hero, and went for a walk with Dad. Then a package was dropped off for me!!! Thank you Graham and Evan!! Wow, super fun. And thanks for making cupcakes for me, they sound like they were super yummy!!! Mmmmmmmmmmmmmm Maybe you could get your mom to call my mom's phone and we could chat?
I also received the "project misbehavin'" update from Agent Logan! Nice work. Maybe you can also call my mom's cell phone too. We're always home in the evening and I'd love to chat!
We're all moved into our new place and mom and I are campin' out here tonight. Dad #2 took Addy back to Kelowna. I think she needs to go to school to brush up on her alphabet.. so she's going tomorrow, and they're back on Sunday! yay!
Friday, back to clinic all day again and then again Saturday morning, Sunday morning and Monday morning!
Hope all is well with everyone and we'll be in touch! Thank you for everything.
Love
Aiden
Went to school this morning and had a good time working on my numbers and playing with my friends outside. Dad picked me up from school and we went to Ronald McDonald house. I played with Curtis, played guitar hero, and went for a walk with Dad. Then a package was dropped off for me!!! Thank you Graham and Evan!! Wow, super fun. And thanks for making cupcakes for me, they sound like they were super yummy!!! Mmmmmmmmmmmmmm Maybe you could get your mom to call my mom's phone and we could chat?
I also received the "project misbehavin'" update from Agent Logan! Nice work. Maybe you can also call my mom's cell phone too. We're always home in the evening and I'd love to chat!
We're all moved into our new place and mom and I are campin' out here tonight. Dad #2 took Addy back to Kelowna. I think she needs to go to school to brush up on her alphabet.. so she's going tomorrow, and they're back on Sunday! yay!
Friday, back to clinic all day again and then again Saturday morning, Sunday morning and Monday morning!
Hope all is well with everyone and we'll be in touch! Thank you for everything.
Love
Aiden
Tuesday, May 26, 2009
May 26th
We're still good!
Been a busy couple days with getting us moved over to the new place, shaving my head, playing with Nana, seeing Uncle Doug, back and forth for chemo, mom working etc. Phew!!
Mom and I will sleep at the new place tomorrow night! Dad #2 taking Ads home to Kelowna tomorrow until Sunday morning!
Still taking my meds, however I haven't been as sick, I didn't even take my one dose of anti-nausea medication today and I felt great all day long. I went to school this morning, then Mom, Ads and Nana picked me up and we grabbed Sushi, took Nana to the airport and then mom set up my new Wii! Who knew mom could do that!? Played Mario cart, played tag in the new backyard and now I'm heading to bed as I have school in the morning then off to dad's and play with my new friend Curtis * he's bald too!!
Mom talked to my nurse who advised day 10-18 could be my worst days with blood transfusion, fever etc. So mom and dad will be doing a lot of learning next week with my nurse.
Thanks to everyone for everything.. especially Nana for coming out to help mom, even if it was just to make her feel secure and safe while dad #2 was gone... as I was all good!
Mom's latest and greatest idea is that she's trying to organize 2000 bags for mom's at children's hospital who have a child diagnosed with leukemia. Anyone who can think of amazing things or help us with getting fabulous things for mom's with sick babes drop mom a note...
Talk to you all soon!
Lots of Love,
Aiden
Been a busy couple days with getting us moved over to the new place, shaving my head, playing with Nana, seeing Uncle Doug, back and forth for chemo, mom working etc. Phew!!
Mom and I will sleep at the new place tomorrow night! Dad #2 taking Ads home to Kelowna tomorrow until Sunday morning!
Still taking my meds, however I haven't been as sick, I didn't even take my one dose of anti-nausea medication today and I felt great all day long. I went to school this morning, then Mom, Ads and Nana picked me up and we grabbed Sushi, took Nana to the airport and then mom set up my new Wii! Who knew mom could do that!? Played Mario cart, played tag in the new backyard and now I'm heading to bed as I have school in the morning then off to dad's and play with my new friend Curtis * he's bald too!!
Mom talked to my nurse who advised day 10-18 could be my worst days with blood transfusion, fever etc. So mom and dad will be doing a lot of learning next week with my nurse.
Thanks to everyone for everything.. especially Nana for coming out to help mom, even if it was just to make her feel secure and safe while dad #2 was gone... as I was all good!
Mom's latest and greatest idea is that she's trying to organize 2000 bags for mom's at children's hospital who have a child diagnosed with leukemia. Anyone who can think of amazing things or help us with getting fabulous things for mom's with sick babes drop mom a note...
Talk to you all soon!
Lots of Love,
Aiden
Sunday, May 24, 2009
May 24th update
We're still good!!!
Day three of the new chemotherapy and we're still good! Yesterday went pretty well. I was sick in the morning, however mom got it all under control and then we headed to the hospital for my next bit of chemo. It all went well and before we knew it we were done and off to enjoy the day. We're moving to a great new place next week. Some very generous people have given us an amazing place to stay that is much more affordable for us. And I mean amazing! Thanks to Kim for organizing this for us! xoxo Then we hit the park, played tag and played all around the playground with Mom, Nana and Addy.
Came home for supper, meds and movie. Oh, and Nana bought me an IPOD! So very cool! I'm going to load some great music that I can listen to when I wake up after my spinals. thanks Nana!
Today I was back to the hospital again for more chemo, then I headed to dad's for the day and we shaved our heads!!! That's right it's gone. It started to come out a little bit just this week, and so we thought we'd just get it done. And dad did his too.. hee hee. Wow he has a big head :)
Thanks again to everyone who is sending texts, emails, phone calls, facebook messages etc during this time!
xoxo
Aiden
Day three of the new chemotherapy and we're still good! Yesterday went pretty well. I was sick in the morning, however mom got it all under control and then we headed to the hospital for my next bit of chemo. It all went well and before we knew it we were done and off to enjoy the day. We're moving to a great new place next week. Some very generous people have given us an amazing place to stay that is much more affordable for us. And I mean amazing! Thanks to Kim for organizing this for us! xoxo Then we hit the park, played tag and played all around the playground with Mom, Nana and Addy.
Came home for supper, meds and movie. Oh, and Nana bought me an IPOD! So very cool! I'm going to load some great music that I can listen to when I wake up after my spinals. thanks Nana!
Today I was back to the hospital again for more chemo, then I headed to dad's for the day and we shaved our heads!!! That's right it's gone. It started to come out a little bit just this week, and so we thought we'd just get it done. And dad did his too.. hee hee. Wow he has a big head :)
Thanks again to everyone who is sending texts, emails, phone calls, facebook messages etc during this time!
xoxo
Aiden
Friday, May 22, 2009
May 22nd
Day of one of fifty-six!
Okay, we have one more Friday under our belts, and it was fine! Long long long day! We started at clinic at 755am and we left around 530pm.
First of all they had to start hydrating me, so they "poked" my VAD and started the IV. I had to be super hydrated so that my kidneys would be able to flush my medication properly. Wow did I pee a lot!!!!!
Then I had to have my spinal, which went okay. The best one yet for sure. I was still scared to get put out but I wasn't as dizzy when I woke up. Mom said I was out for less then 5 minutes, which is also the fastest one yet.
Chemotherapy was next. It was for just over a half an hour and then the side effects were suppose to start... so we waited.. and we waited... and we waited... and nothing!
The day was good, actually better then good. My new friend Curtis was also there today and we played X-Box for about... 7 HOURS! I thought mom was going to lose her mind, but she just let me play, it was awesome!
We also had a great visit today from FLSC! Mrs. Liegmann showed up with Ava's Dad (yes, THE AVA... sorry that's your title "Ava's dad") and Pastor Lee too! They brought me notes from my class, a card, stars from Ava, and a wonderful "gift" for mom too. Thank you First Lutheran Church and School!!!
Then Nana and Addy picked us up, we came home and ate tacos and popcorn, had a tub, watched movies, had some more medicine and went to bed!
Back in clinic again tomorrow and again Sunday and again Monday. Long hard weekend for sure, but we're living for today.. and today is good!
Thank you to everyone who was sending us positive thoughts, texts, calls, emails, prayers and everything else today. And Thank you again to FLCS for everything, it is So appreciated and it was so nice to see you!
XOXO
Aiden
Okay, we have one more Friday under our belts, and it was fine! Long long long day! We started at clinic at 755am and we left around 530pm.
First of all they had to start hydrating me, so they "poked" my VAD and started the IV. I had to be super hydrated so that my kidneys would be able to flush my medication properly. Wow did I pee a lot!!!!!
Then I had to have my spinal, which went okay. The best one yet for sure. I was still scared to get put out but I wasn't as dizzy when I woke up. Mom said I was out for less then 5 minutes, which is also the fastest one yet.
Chemotherapy was next. It was for just over a half an hour and then the side effects were suppose to start... so we waited.. and we waited... and we waited... and nothing!
The day was good, actually better then good. My new friend Curtis was also there today and we played X-Box for about... 7 HOURS! I thought mom was going to lose her mind, but she just let me play, it was awesome!
We also had a great visit today from FLSC! Mrs. Liegmann showed up with Ava's Dad (yes, THE AVA... sorry that's your title "Ava's dad") and Pastor Lee too! They brought me notes from my class, a card, stars from Ava, and a wonderful "gift" for mom too. Thank you First Lutheran Church and School!!!
Then Nana and Addy picked us up, we came home and ate tacos and popcorn, had a tub, watched movies, had some more medicine and went to bed!
Back in clinic again tomorrow and again Sunday and again Monday. Long hard weekend for sure, but we're living for today.. and today is good!
Thank you to everyone who was sending us positive thoughts, texts, calls, emails, prayers and everything else today. And Thank you again to FLCS for everything, it is So appreciated and it was so nice to see you!
XOXO
Aiden
Tuesday, May 19, 2009
May 19th update
May 19th.. the day of mom!
Today was another great day! I got up this morning and went to school, I had show and tell today and brought a new bionicle that we built. Very cool. Then dad#2 picked me up after school and we went for lunch and picked mom up a surprise birthday cake!
We arrived home and I had a huge nap, 3 hours!! I woke up in time for a rib feast and then we all got to go the Vancouver Aquarium for Dream Night. They opened the aquarium to sick kids from children's hospital and we got to touch and hold crabs, sea erchants, star fish, hermit crabs, and a sea cucumber. It was crazy! We saw a dolphin and bulga show and a lady diving in the deep sea tank. There was face painting, tattoos, Fin the mascot from the Canucks and more! It was awesome. The only reason I was allowed to go was because my counts are so good. Mom was constantly washing my hands with gel and wipes and we all had a huge scrub when we got home. But it was so worth it! Too fun!
We're taking this week slow slow slow as Friday is going to be hard. The first really aggressive chemo will begin and I'll have to be at the hospital for about 8 hours Friday, 2-4 hours Saturday, Sunday and Monday. The schedule goes on for 56 days. So we're taking this week of feeling fantastic slow, slow, slow. Nana's coming down Thursday to help out! Yay Nana!!
Big Thank you to the First Lutheran Church and School! The foundation you've created for us is amazing and we are truly grateful!
Thanks thanks thanks to the Baliski's for everything for us, Laura for mom's super cool flowers, Anne and Ron for the beautiful basket, Deb for "fun glasses" mom calls them, and all mom's birthday wishes. To anyone else we may have missed, Thank you!
I'm off to school tomorrow, mom off to work and then plans for a kite flying evening tomorrow night. Hope it's windy!
Xoxo
Aiden
Today was another great day! I got up this morning and went to school, I had show and tell today and brought a new bionicle that we built. Very cool. Then dad#2 picked me up after school and we went for lunch and picked mom up a surprise birthday cake!
We arrived home and I had a huge nap, 3 hours!! I woke up in time for a rib feast and then we all got to go the Vancouver Aquarium for Dream Night. They opened the aquarium to sick kids from children's hospital and we got to touch and hold crabs, sea erchants, star fish, hermit crabs, and a sea cucumber. It was crazy! We saw a dolphin and bulga show and a lady diving in the deep sea tank. There was face painting, tattoos, Fin the mascot from the Canucks and more! It was awesome. The only reason I was allowed to go was because my counts are so good. Mom was constantly washing my hands with gel and wipes and we all had a huge scrub when we got home. But it was so worth it! Too fun!
We're taking this week slow slow slow as Friday is going to be hard. The first really aggressive chemo will begin and I'll have to be at the hospital for about 8 hours Friday, 2-4 hours Saturday, Sunday and Monday. The schedule goes on for 56 days. So we're taking this week of feeling fantastic slow, slow, slow. Nana's coming down Thursday to help out! Yay Nana!!
Big Thank you to the First Lutheran Church and School! The foundation you've created for us is amazing and we are truly grateful!
Thanks thanks thanks to the Baliski's for everything for us, Laura for mom's super cool flowers, Anne and Ron for the beautiful basket, Deb for "fun glasses" mom calls them, and all mom's birthday wishes. To anyone else we may have missed, Thank you!
I'm off to school tomorrow, mom off to work and then plans for a kite flying evening tomorrow night. Hope it's windy!
Xoxo
Aiden
Saturday, May 16, 2009
May 16th
update update update
Hello everyone.. Sorry we've been without internet for a couple days. We had a great week, of school, playing at parks, football, flying kites etc. My blood is doing really really well and I feel great. Addy and Dad #2 are back from Kelowna - yay!
We had clinic on Friday, however no chemo. Yay! They did the spinal and the marrow, which I don't like as it makes me dizzy when I wake up, however at least it was quick. I met with a physiotherapist as I'm having some side effects to one of the chemo medicine that makes my feet and legs feel funny (especially my right one) it's a bit weird to do stairs and running is kind of awkward. However, she says it's all normal and she'll fix me up! Perfect.. (I would prefer if my physio was Little Laura, however this one's okay for now)
We expect to have a great week!... until Friday. This coming Friday we take things up a notch. So, Friday is a long gross day and they say I'll have some pretty bad reactions to my new medicine, then I have to go back again Saturday, Sunday and Monday. This schedule is for the next 56 days, it's aggressive, and isn't going to be fun for anyone. However, we have to do it, we're going to push through and again, it's nothing we can't handle. And the silver lining: Nana arrives Thursday night to help mom.
I've been super busy playing and making bionicles and this new sticky mosaic pictures I've been making. I'm still eating like crazy, can't get enough food in my belly. And mom's being pretty understanding (after chatting with my Dr) about letting me eat some "bad stuff" :)
Thanks: Bexx, Samia, Marg and Jim, Bimy, Christy, Darlene and Kevin, Renee, and Shannon.
Mom got pretty spoiled on her birthday weekend - thanks for an amazing dinner, visit, gifts etc D&K.. WOW, loved it all! And thanks to R & S for making the road trip for one fantastic day of pampering, chats, and true amazing friendship! xoxo.
Thank you to everyone who reads this.. we're day to day of fun this week... not even thinking about FRIDAY!
xoxo
Aiden
Hello everyone.. Sorry we've been without internet for a couple days. We had a great week, of school, playing at parks, football, flying kites etc. My blood is doing really really well and I feel great. Addy and Dad #2 are back from Kelowna - yay!
We had clinic on Friday, however no chemo. Yay! They did the spinal and the marrow, which I don't like as it makes me dizzy when I wake up, however at least it was quick. I met with a physiotherapist as I'm having some side effects to one of the chemo medicine that makes my feet and legs feel funny (especially my right one) it's a bit weird to do stairs and running is kind of awkward. However, she says it's all normal and she'll fix me up! Perfect.. (I would prefer if my physio was Little Laura, however this one's okay for now)
We expect to have a great week!... until Friday. This coming Friday we take things up a notch. So, Friday is a long gross day and they say I'll have some pretty bad reactions to my new medicine, then I have to go back again Saturday, Sunday and Monday. This schedule is for the next 56 days, it's aggressive, and isn't going to be fun for anyone. However, we have to do it, we're going to push through and again, it's nothing we can't handle. And the silver lining: Nana arrives Thursday night to help mom.
I've been super busy playing and making bionicles and this new sticky mosaic pictures I've been making. I'm still eating like crazy, can't get enough food in my belly. And mom's being pretty understanding (after chatting with my Dr) about letting me eat some "bad stuff" :)
Thanks: Bexx, Samia, Marg and Jim, Bimy, Christy, Darlene and Kevin, Renee, and Shannon.
Mom got pretty spoiled on her birthday weekend - thanks for an amazing dinner, visit, gifts etc D&K.. WOW, loved it all! And thanks to R & S for making the road trip for one fantastic day of pampering, chats, and true amazing friendship! xoxo.
Thank you to everyone who reads this.. we're day to day of fun this week... not even thinking about FRIDAY!
xoxo
Aiden
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