Hello everyone,
Day one of school was a success!! My teacher was great, of course not as great as Mrs. Merryfield, but pretty fun. I worked through my vowels, some math, and my journal. It went well. I would normally be going tomorrow morning as well, however we have "clinic" in the morning. Clinic is usually every Friday, however there was a change this week due to scheduling of nurses. So, the morning will begin with another bone marrow followed by chemotherapy. It's a gross day for everyone, but it'll be nice to see how low my % is. And then if I feel good, back to school for Friday morning.
After school today mom and I had a lunch date. She packed a picnic and we went to Stanley Park. We peeked through the windows and saw the seals and the beluga whales (even the new baby whale) and then we saw an eagle show. It was pretty fun. We fed the ducks and headed back home to get some down time in.
Then mom and I decided to walk to the bank (which is about 25m from our front door) and I decided I wanted something sweet. So we walked down to Max's Deli (about .4km each way) and I had the biggest, yummiest cinnamon bun ever. mmmmmm! Then on the way back we hit the movie store and rented Jurassic Park III.
I had a big supper, a tub and my meds and now I'm lying in bed watching my movie. It was a positive day.
Logan sent me a message and said they had a bake sale at school for me and my family today! Wow, and thank you First Lutheran!! And Logan, great job on our secret project, keep up the emails.
Thank yous - Uncle Jim and Auntie Denise sent a package with a very cool sea creature that I use to battle with my bionicles... and some honey mustard! Love honey mustard!!! They sent something for Addy too but we'll wait for her to open it.
Dominics crazy videos! Wow, keep those coming pls! Good laugh for me and mom. Then we got some cards from the Bytelaars, and the Deeks along with a cool bracelet from Mexico with my name on it! Thanks!
The Deb Taylor sent mom a basket from home. She's sneaky! She got into our house and sent mom's clock,(that she hid a spider in for me!) a pillow, a family picture, a picture of her and mom etc. Toby added a great top and some cool earrings.. mom loved them, and Carly added in a Rockets Towel and some chocolate.. yay!! Made mom smile a lot (good idea S!) Thanks Ladies!!
Hi to Dad #2 who's at home with Ads and Thank you to Dilys who's been letting her have sleep overs while he works nights. xoxo. Nana and Papa arrive tomorrow in Kelowna and the to do list for Papa is extensive! :)
If we forget any thank you's, sorry. We try to remember everyone and we appreciate all the generosity that everyone has shown to us!
Off to watch my movie as mom packs, moving day is Sunday!
Hugs and Kisses
Aiden
Wednesday, April 29, 2009
Tuesday, April 28, 2009
April 28th update
Hello Aiden Fans!
Today has been a good day! Super sunny and lots to update. This morning we went and saw our new place! That's right! No more smelly Easter Seals. Mom and I are movin' on up! We got a basement suite in a beautiful neighbourhood 4 minutes from the hospital! We each have our own bedroom, a patio, a yard, across from a field where we can fly kites etc. It will be awesome!!! Yay!!!
Next I went to my new school. Met my teacher and there are 4 other boys in my class. I start... tomorrow! There's no messin' around with mom. Should be fun and mom is very excited about the structure/normalcy thing again.
Then we had a meeting with Dr. Lucy. She is pleased with my progress. When I arrived here I had 99% bad cells in my bone marrow, now I have 21% and hope to have less then 5% by Friday! The medicine is working. She also dropped one of my medications and gave me another in a pill form as the liquid tastes terrible!
Then we grabbed a coffee at Starbucks.. and happen to run into Daniel SEDIN! Awesome!! I was too shy to say hi, but waived from a distance. Go Canucks Go!!
Now, we are heading out on the town. Dad #2 took Addy back to Kelowna so the GPS will come in handy down here for mom. Off to Toys r Us to take some stuff back and get something for the new place instead. OUTSIDE STUFF - yay!!!!
Thanks to everyone for everything.. busy packing tonight.
xoxo
Aiden
Today has been a good day! Super sunny and lots to update. This morning we went and saw our new place! That's right! No more smelly Easter Seals. Mom and I are movin' on up! We got a basement suite in a beautiful neighbourhood 4 minutes from the hospital! We each have our own bedroom, a patio, a yard, across from a field where we can fly kites etc. It will be awesome!!! Yay!!!
Next I went to my new school. Met my teacher and there are 4 other boys in my class. I start... tomorrow! There's no messin' around with mom. Should be fun and mom is very excited about the structure/normalcy thing again.
Then we had a meeting with Dr. Lucy. She is pleased with my progress. When I arrived here I had 99% bad cells in my bone marrow, now I have 21% and hope to have less then 5% by Friday! The medicine is working. She also dropped one of my medications and gave me another in a pill form as the liquid tastes terrible!
Then we grabbed a coffee at Starbucks.. and happen to run into Daniel SEDIN! Awesome!! I was too shy to say hi, but waived from a distance. Go Canucks Go!!
Now, we are heading out on the town. Dad #2 took Addy back to Kelowna so the GPS will come in handy down here for mom. Off to Toys r Us to take some stuff back and get something for the new place instead. OUTSIDE STUFF - yay!!!!
Thanks to everyone for everything.. busy packing tonight.
xoxo
Aiden
April 27th and morning of the 28th
Hello everyone,
Sorry I didn't update yesterday I got home from Dad's and was filling mom in on my day at Stanley Park, had some tacos, a shower and meds and bed.
For Today; Woke up and was sooo hungry. So I had two pieces of toast and a veggie omelet all to myself. It was delicious! Mom did some research, (you know how that goes when she gets left alone for 24 hours), and found out I can go to school here... thanks a million mom. So, this morning we're going over to childrens hospital to meet my new teachers Laurie and Jack. As long as I feel good I will be going every morning from 930 till noon. She keeps using the words structure and normalicy when talking to anyone which I think is a good thing :)
Then we have a meeting with my Dr this afternoon that will determine whether I have to have more bone marrow and another spinal on Friday with my chemotherapy. Hope that answer is no and all the "blast" cells are gone! Keep your fingers crossed. Then the plan is for mom and me to find a slurpee place and then maybe hitting a pet store (TO LOOK ONLY) Dad #2 taking Ads home to Kelowna and Nana and Papa are coming down to hold the fort.
Thanks to the Hymers family for the package! And thanks to Owen and Callum for not letting your mom buy me anymore educational books. :) Mom says that if I can't do long division by the time we're done here, there's a problem, with all the educational material we have. Thanks everyone...
Also, Dominic for the video updates. It was great to see you even if it was through a computer screen. You crack me up.
And to everyone who's doing amazing things for my mom.. last night she said she felt settled, relaxed and didn't even get grouchy when dad#2 beat her in crib. I know she couldn't do this without her parents, Dustin, family, and friends. Thank you.
xoxo
Aiden
Sorry I didn't update yesterday I got home from Dad's and was filling mom in on my day at Stanley Park, had some tacos, a shower and meds and bed.
For Today; Woke up and was sooo hungry. So I had two pieces of toast and a veggie omelet all to myself. It was delicious! Mom did some research, (you know how that goes when she gets left alone for 24 hours), and found out I can go to school here... thanks a million mom. So, this morning we're going over to childrens hospital to meet my new teachers Laurie and Jack. As long as I feel good I will be going every morning from 930 till noon. She keeps using the words structure and normalicy when talking to anyone which I think is a good thing :)
Then we have a meeting with my Dr this afternoon that will determine whether I have to have more bone marrow and another spinal on Friday with my chemotherapy. Hope that answer is no and all the "blast" cells are gone! Keep your fingers crossed. Then the plan is for mom and me to find a slurpee place and then maybe hitting a pet store (TO LOOK ONLY) Dad #2 taking Ads home to Kelowna and Nana and Papa are coming down to hold the fort.
Thanks to the Hymers family for the package! And thanks to Owen and Callum for not letting your mom buy me anymore educational books. :) Mom says that if I can't do long division by the time we're done here, there's a problem, with all the educational material we have. Thanks everyone...
Also, Dominic for the video updates. It was great to see you even if it was through a computer screen. You crack me up.
And to everyone who's doing amazing things for my mom.. last night she said she felt settled, relaxed and didn't even get grouchy when dad#2 beat her in crib. I know she couldn't do this without her parents, Dustin, family, and friends. Thank you.
xoxo
Aiden
Sunday, April 26, 2009
April 26th
Hi guys,
Things are A-okay again today.. nothing much to report. Going to spend the night at dad's with Auntie (to help with all my medicines). Had a good sleep and a huge breakfast; two bowls of alphabets cereal, an egg, and water! mmmmm!!!
Mom's friend Kim stopped by this morning for a visit which made mom very happy. Mom wants to thank her for the Max's Deli gift certificates, which I think they are using today without me! And her other friend Shawni sent down an AMAZING Canucks mask for me. Wow, it is super cool. Thank you Shawni!!!!!!!!!!!!!!!
Ads, mom and dad#2 are hitting the Deli, the park and going to drive around to see if mom can figure her way around Vancouver without Dad#2 around for a couple days next week.
So that's about all I can say.. my medicine is still terrible, I'm still a little tired, I still hate rinsing with baking soda and water 4 times per day, but other then that... life is ok and we're pushin' through.
Off to dad's.. until tomorrow.
Hugs!
A
Things are A-okay again today.. nothing much to report. Going to spend the night at dad's with Auntie (to help with all my medicines). Had a good sleep and a huge breakfast; two bowls of alphabets cereal, an egg, and water! mmmmm!!!
Mom's friend Kim stopped by this morning for a visit which made mom very happy. Mom wants to thank her for the Max's Deli gift certificates, which I think they are using today without me! And her other friend Shawni sent down an AMAZING Canucks mask for me. Wow, it is super cool. Thank you Shawni!!!!!!!!!!!!!!!
Ads, mom and dad#2 are hitting the Deli, the park and going to drive around to see if mom can figure her way around Vancouver without Dad#2 around for a couple days next week.
So that's about all I can say.. my medicine is still terrible, I'm still a little tired, I still hate rinsing with baking soda and water 4 times per day, but other then that... life is ok and we're pushin' through.
Off to dad's.. until tomorrow.
Hugs!
A
Saturday, April 25, 2009
April 24th and 25th
Hello everyone,
Sorry I didn't write yesterday it was a super busy, kind of gross day for everyone. It started with my spinal tap and bone marrow in the morning which mom really has a hard time with, followed by chemo right after. It made me a little sick to my belluy, I threw up on my mom and then they gave me some good sleep medicine called GRAVOL!
I slept in my room with dad while mom and dad#2 went and got our new home away from home organized. It's a little.... different. Old, and kind of run down which made mom a little teary, but she's doing her best to fix it right up! Auntie Nicole and Uncle Doug are bringing me my hockey comforter back to Vancouver tonight which will help spruce up my side of the room.
Today, had my gross medicine in the am, then me, mom, Ads, and dad#2 headed down to Granville Island. I ate two huge pieces of apple pie in the coffee shop and then fed the Pigeons. They ate food right out of my hand it was pretty cool. Lots of things to see and do down there. Mom and I plan to hit the market most days for fresh fruits and vegetables and a big walk. I tired after about an hour, came home and mom gave the me huge scrub down, took my temp etc etc. Once she was satisfied I was okay I relaxed with a bowl of strawberries, my blanket and the TV.
Dad's picking me and Ads up at 130 as Auntie is back in town. Mom's going to be busy making this place home and i'll be back at 7pm.
Thanks again to everyone. And special thanks for Auntie Nicole and Uncle Doug for bringing some of my special stuff down. Oh, and mom wants to thank Shannon for the chat last night about everything.. moms says she'll fill you all in on her plan to help other mom's at childrens hospital with kids that have leukemia feel good about themselves while things are tough. New GOAL!
Hope everything is well with all of you. Hugs to everyone.
Aiden
Sorry I didn't write yesterday it was a super busy, kind of gross day for everyone. It started with my spinal tap and bone marrow in the morning which mom really has a hard time with, followed by chemo right after. It made me a little sick to my belluy, I threw up on my mom and then they gave me some good sleep medicine called GRAVOL!
I slept in my room with dad while mom and dad#2 went and got our new home away from home organized. It's a little.... different. Old, and kind of run down which made mom a little teary, but she's doing her best to fix it right up! Auntie Nicole and Uncle Doug are bringing me my hockey comforter back to Vancouver tonight which will help spruce up my side of the room.
Today, had my gross medicine in the am, then me, mom, Ads, and dad#2 headed down to Granville Island. I ate two huge pieces of apple pie in the coffee shop and then fed the Pigeons. They ate food right out of my hand it was pretty cool. Lots of things to see and do down there. Mom and I plan to hit the market most days for fresh fruits and vegetables and a big walk. I tired after about an hour, came home and mom gave the me huge scrub down, took my temp etc etc. Once she was satisfied I was okay I relaxed with a bowl of strawberries, my blanket and the TV.
Dad's picking me and Ads up at 130 as Auntie is back in town. Mom's going to be busy making this place home and i'll be back at 7pm.
Thanks again to everyone. And special thanks for Auntie Nicole and Uncle Doug for bringing some of my special stuff down. Oh, and mom wants to thank Shannon for the chat last night about everything.. moms says she'll fill you all in on her plan to help other mom's at childrens hospital with kids that have leukemia feel good about themselves while things are tough. New GOAL!
Hope everything is well with all of you. Hugs to everyone.
Aiden
Thursday, April 23, 2009
Just a quick
Thank you thank you thank you! I just finished texting with Toby.. and to everyone who attended Influence tonight and shopped for us, THANK YOU. It was a huge success and we are truly grateful for all your generosity. Toby, thank you. I'm speechless .. tears.. (and that's tough to do for this girl, who ALWAYS has something to say.) I really do have the BEST GIRLFRIENDS IN THE WORLD!
xoxox
Deb
xoxox
Deb
April 23 day 8
Hello hello,
Once again I let my mom sleep till 900. After I had breakfast and everyone else got here I was ready to get outside once again. So dad and I went for a coffee and he picked me up a rubber snake, also to scare the nurses with. Thanks dad. Then we took our lunch outside on the lawn and had a picnic. It didnt last very long though as I got very tired and it was a little windy and cold. We played with our new "catch game" which was part of the amazing box of goodies from the Baliski's! When big packages arrive, I'm only allowed to choose one or two thing and the rest is put away for other days. so I chose the catch game and a new Ben 10 DS Game!!! Super fun. Thanks Jo Jo!!
Then I had a little rest and three more envelopes arrived. My favorite of course was my card and necklace from Ava. I have it on and her card and photo up beside my bed. I miss you too Ava. Then mom's friend Shanna sent a "generous" card and Grandma and Grandpa also sent me a note and a picture. Thank you everyone!
Next, we had education time.. boring!!! We found out where we go when we have to come back to the hospital for treatment etc. It was painful and mom got a little over whelmed so she and I bailed and went for a snuggle in my room instead. Phew!
Then they gave me some platelets as I have chemo, bone marrow and a spinal tap in the morning. Not fun, but NOTHING we can't handle! Then tomorrow evening we hope to move out of here and into Easter Seals on Oak Street. It's a little older, ok a lot older, and mom's being kind of silly about wanting to make it amazing... so guess what, it WILL be amazing! So, I have a feeling when I'm resting tomorrow Pottery Barn, Urban Barn, Pier One and Walmart etc will all know my mom's name!
Tonight my mom actually bought me jello! You know the premade, full of sugar, blue raspberry, the kind that's not even in the cold section of the store, type jello. Yes, MY mom let me have one of those.... and it was FANTASTIC! Thanks mom!
Special thanks to Toby! She had a big party for me at her very cool store, INFLUENCE, tonight. Thanks to Tobes and everyone who attended! xox
Secret Agent Logan- nice update via email today.. keep "project misbehavin'" on the down low dude!
Mrs Merryfield; today would've been a perfect day for homework.... and... it didn't happen. we'll try for the weekend. :)
Love to all. Friends, Family, you're all amazing. Truly!!
xoxo
A
Once again I let my mom sleep till 900. After I had breakfast and everyone else got here I was ready to get outside once again. So dad and I went for a coffee and he picked me up a rubber snake, also to scare the nurses with. Thanks dad. Then we took our lunch outside on the lawn and had a picnic. It didnt last very long though as I got very tired and it was a little windy and cold. We played with our new "catch game" which was part of the amazing box of goodies from the Baliski's! When big packages arrive, I'm only allowed to choose one or two thing and the rest is put away for other days. so I chose the catch game and a new Ben 10 DS Game!!! Super fun. Thanks Jo Jo!!
Then I had a little rest and three more envelopes arrived. My favorite of course was my card and necklace from Ava. I have it on and her card and photo up beside my bed. I miss you too Ava. Then mom's friend Shanna sent a "generous" card and Grandma and Grandpa also sent me a note and a picture. Thank you everyone!
Next, we had education time.. boring!!! We found out where we go when we have to come back to the hospital for treatment etc. It was painful and mom got a little over whelmed so she and I bailed and went for a snuggle in my room instead. Phew!
Then they gave me some platelets as I have chemo, bone marrow and a spinal tap in the morning. Not fun, but NOTHING we can't handle! Then tomorrow evening we hope to move out of here and into Easter Seals on Oak Street. It's a little older, ok a lot older, and mom's being kind of silly about wanting to make it amazing... so guess what, it WILL be amazing! So, I have a feeling when I'm resting tomorrow Pottery Barn, Urban Barn, Pier One and Walmart etc will all know my mom's name!
Tonight my mom actually bought me jello! You know the premade, full of sugar, blue raspberry, the kind that's not even in the cold section of the store, type jello. Yes, MY mom let me have one of those.... and it was FANTASTIC! Thanks mom!
Special thanks to Toby! She had a big party for me at her very cool store, INFLUENCE, tonight. Thanks to Tobes and everyone who attended! xox
Secret Agent Logan- nice update via email today.. keep "project misbehavin'" on the down low dude!
Mrs Merryfield; today would've been a perfect day for homework.... and... it didn't happen. we'll try for the weekend. :)
Love to all. Friends, Family, you're all amazing. Truly!!
xoxo
A
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