Hello hello!
Hope this finds you all well. Today.. today was needle number 12. That's right 12! Mom and I have found the best way to deal with it and it works awesome! I get mad, really mad. Today my nurse was Allie. She's great! Mom sits behind me on the bed, dad holds my legs, and I yell "Go Allie, Go! Get going Allie, do it!" And I squeeze mom's hands as hard as I can, and I yell a little angry yell and it's over! Phew... only 6 more to go!
I had the rest of my chemotherapy medicine today too, so I'm a little sick but I have lots of other medicine in me that is keeping it under control. I spent the afternoon coloring and drawing, we watched a movie after supper, and I was asleep my 7pm.
I'm back on the steroids which I enjoy! I eat and eat and eat. Today I had a can and a half of alphagetti, two pieces of bread and peanut butter, an apple fritter, and then some snacks for lunch. Dinner I wasn't feeling quite as hungry which can only mean........ MIDNIGHT SNACK! Drives mom crazy! Ha, especially when I ask for garlic bread or fresh mashed potatoes. She always tries to offer things like an apple, granola bar, .. you know easy stuff but that is never what I'm after. So, she gets out of bed and whips up my food of choice and then it starts all over again the minute I wake up! Last time I woke up at 6am starving and mom told me to grab some cereal and watch tv... I ate half a box of Apple Jacks, then I had my oatmeal and berries when she got up at 7!
We're plugging along taking it day by day. I'll probably need a blood transfusion next week, number 11, but other then that we have a week+ break in our schedule. I won't be feeling amazing or able to go anywhere where there are lots of people etc, but at least I have a break from the needles in the leg and the medicine.
Now mom's got to get some sleep before I wake her up for my midnight snack!
Thank you for reading!
Hugs!
Aiden
PS - Ava, I miss you.
Wednesday, October 21, 2009
Thursday, October 15, 2009
Thursday October 15th
Hello everyone,
It's been a tough week however today was a better day. Mom took me off the gravol hoping it would put the spring back in my step and hopefully keep the vomit away and IT WORKED!
Wow, way better today! So much better! Not sick, more energy, and way better.
We had another needle on Wednesday and number 5 is tomorrow! Ugh! Hate them hate them hate them.. They are so tough. However, I've had my needle in my chest for 10 days and I'm excited to get it out tomorrow so I can I tickle and tackle!!!!! Yay!
We've been hangin' pretty low, coloring, playing fish, and lots of movies and snuggles.
Hope this finds you all well.. day 11 is complete!
xoxo
Aiden
It's been a tough week however today was a better day. Mom took me off the gravol hoping it would put the spring back in my step and hopefully keep the vomit away and IT WORKED!
Wow, way better today! So much better! Not sick, more energy, and way better.
We had another needle on Wednesday and number 5 is tomorrow! Ugh! Hate them hate them hate them.. They are so tough. However, I've had my needle in my chest for 10 days and I'm excited to get it out tomorrow so I can I tickle and tackle!!!!! Yay!
We've been hangin' pretty low, coloring, playing fish, and lots of movies and snuggles.
Hope this finds you all well.. day 11 is complete!
xoxo
Aiden
Saturday, October 10, 2009
Saturday October 10th
Hey.. it still sucks......However, tonight is better!
I had my needle in my leg yesterday and I WAS NOT HAPPY ABOUT IT.. and let me tell you the ENTIRE Oncology clinic knew it. Nurses even came in after and were cheering me on, telling me how spectacular my lungs are and everything.
Then we had to do the booger test again! Yes, again! They stuck the water up my nose and I had to blow out my boogers into a cup. Funny!
Then last night we all went to Stanley Park and went on the Ghost Train. I wasn't feeling great but I pushed through.. A raccoon came right up to Addy and tried to steal her hot chocolate. Mom ran over and picked her up so fast I thought Addy was flying. The raccoon didn't even flinch.. it was so cool. The Ghost Train was pretty freaky, but I know it's not real.
I just about made it home and... sick again! Mom's poor car! Seriously! So, for the rest of the night I was pretty medicated and up again in the middle for more. I felt terrible again this morning, so mom called the Oncologist and got me into the hospital for a check.. and on the way.. sick again.. just as I was leaving mom's car!
I was dehydrated, tired, and not feeling well at all. So, they pumped me full of goodness, took my blood and we left about 4pm. And then I was starving!!!!
So, I ate A&W, sushi, then mom roasted a chicken with home aid stuffing and creamed corn. I had two separate sittings of chicken after my sushi, then I watched some TV and had apple pie! I think the steroids are finally kickin' in!!! Watch out scale!
So, it's been a tough couple days however I think we're on the upswing! Just in time for turkey, ham, potatoes, desserts, etc.
Back on Thanksgiving Monday for another needle...
I hope every body has a fantastic Thanksgiving! We are thankful for the fact that I'm getting better, we have a fantastic place to stay, we have a great nurses and Dr's looking after me, my grandparents, my sister (my mom said I had to put that), my friends, my family, my mom's friends, and as much as this round is terrible... we are thankful it's the a last round *then 3 years of Maintenance.. which we can do.
** Thanks to Blaise and Colette for the lovely card and letter!
Happy Thanksgiving and thank you for reading,
Love
Aiden
I had my needle in my leg yesterday and I WAS NOT HAPPY ABOUT IT.. and let me tell you the ENTIRE Oncology clinic knew it. Nurses even came in after and were cheering me on, telling me how spectacular my lungs are and everything.
Then we had to do the booger test again! Yes, again! They stuck the water up my nose and I had to blow out my boogers into a cup. Funny!
Then last night we all went to Stanley Park and went on the Ghost Train. I wasn't feeling great but I pushed through.. A raccoon came right up to Addy and tried to steal her hot chocolate. Mom ran over and picked her up so fast I thought Addy was flying. The raccoon didn't even flinch.. it was so cool. The Ghost Train was pretty freaky, but I know it's not real.
I just about made it home and... sick again! Mom's poor car! Seriously! So, for the rest of the night I was pretty medicated and up again in the middle for more. I felt terrible again this morning, so mom called the Oncologist and got me into the hospital for a check.. and on the way.. sick again.. just as I was leaving mom's car!
I was dehydrated, tired, and not feeling well at all. So, they pumped me full of goodness, took my blood and we left about 4pm. And then I was starving!!!!
So, I ate A&W, sushi, then mom roasted a chicken with home aid stuffing and creamed corn. I had two separate sittings of chicken after my sushi, then I watched some TV and had apple pie! I think the steroids are finally kickin' in!!! Watch out scale!
So, it's been a tough couple days however I think we're on the upswing! Just in time for turkey, ham, potatoes, desserts, etc.
Back on Thanksgiving Monday for another needle...
I hope every body has a fantastic Thanksgiving! We are thankful for the fact that I'm getting better, we have a fantastic place to stay, we have a great nurses and Dr's looking after me, my grandparents, my sister (my mom said I had to put that), my friends, my family, my mom's friends, and as much as this round is terrible... we are thankful it's the a last round *then 3 years of Maintenance.. which we can do.
** Thanks to Blaise and Colette for the lovely card and letter!
Happy Thanksgiving and thank you for reading,
Love
Aiden
Thursday, October 8, 2009
Thursday October 8th
Well.... it's begun! This round officially sucks!
I got up and went to school today however probably shouldn't have. I hit a wall pretty early in and then just hung out at home, pretty quiet for the rest of the day. Feelin' yucky yucky yucky! And to top it off I'm getting a cold, so mom's been email my nurse all afternoon.
Tomorrow, intra muscular injections start and they'll have to run some tests with my cold. There's potential we could be admitted to hospital, but we'll have to see what the results say... Seriously people, are we almost done!?
Everything else is fine. Addy's good and crazy as usual and keep us all laughing!
Thanks for reading!.... I've actually been asleep since 630pm, I just told mom what to write before I fell asleep... up at 1am for more meds. I always wonder who's up at that time of the night.. mom always say "The police, sometimes the firemen, and the crazies." , who ever they are???
xoxo
Aiden
I got up and went to school today however probably shouldn't have. I hit a wall pretty early in and then just hung out at home, pretty quiet for the rest of the day. Feelin' yucky yucky yucky! And to top it off I'm getting a cold, so mom's been email my nurse all afternoon.
Tomorrow, intra muscular injections start and they'll have to run some tests with my cold. There's potential we could be admitted to hospital, but we'll have to see what the results say... Seriously people, are we almost done!?
Everything else is fine. Addy's good and crazy as usual and keep us all laughing!
Thanks for reading!.... I've actually been asleep since 630pm, I just told mom what to write before I fell asleep... up at 1am for more meds. I always wonder who's up at that time of the night.. mom always say "The police, sometimes the firemen, and the crazies." , who ever they are???
xoxo
Aiden
Tuesday, October 6, 2009
Tuesday October 6th
Hello everyone!
Great day again today... the last sleep before my last round!
I got up and we went to the hospital this morning to get my blood checked for tomorrow. One of my levels (ANC) needs to be at .75 before I'm suppose to start. It came back at .72! So, mom talked to our nurse, who then talked to my Dr and I'm going ahead!!
I went to schoold and then we got organized to take mom to give blood for the first time! I've had 10 transfusions already, so it's time! Some news and radio people were there and we talked for a bit. Global was suppose to come, but didn't show! CBC ran a quick clip at 5pm and we hope to see it again at 10pm tonight! SHAW was there and we'll be on all day Sunday!! I made sure I added that if Mr Luongo was watching I'd really like to meet him! You have to take advantage of these key moments!
Then we went scootering and enjoyed the rest of the afternoon and tonight we watched Harry POTTER.
Tomorrow shouldn't be too bad. A Spinal in the morning first thing.. so no breakfast. Then three different chemotherapy medications to follow. Hope to be out of there by noon.
One of the chemo medications makes me super sick, so we're trying a new anti nausea drug that's made from marijuana, I hear it's a plant that makes people super silly! I took it tonight and it made me a little crazy!! Fun though! I also start steriods again tomorrow which mean cooking cooking cooking for mom! They make me so hungry! Last time I ate an entire roasted chicken, mashed potatoes and gravy and a whole can of corn! I even used to wake up in the night and ask mom to make me an omelet!.. and SHE DID! The intra muscular injections start again on Friday.. those are super terrible... 12 more to go! We count through them and it takes about 18 seconds on average. It's the worst 18 seconds of my day.. but it'll make me better!
Hope you all can catch the quick clip on CBC tonight and if not try to tune in to SHAW on the weekend. I hope to get a copy of it, and I'll add it to the blog soon.
Thanks for reading! Welcome to the final stage people! Wish me luck it's going to be a tough one! .... but nothing we can't handle!
xoxo
Aiden!
Great day again today... the last sleep before my last round!
I got up and we went to the hospital this morning to get my blood checked for tomorrow. One of my levels (ANC) needs to be at .75 before I'm suppose to start. It came back at .72! So, mom talked to our nurse, who then talked to my Dr and I'm going ahead!!
I went to schoold and then we got organized to take mom to give blood for the first time! I've had 10 transfusions already, so it's time! Some news and radio people were there and we talked for a bit. Global was suppose to come, but didn't show! CBC ran a quick clip at 5pm and we hope to see it again at 10pm tonight! SHAW was there and we'll be on all day Sunday!! I made sure I added that if Mr Luongo was watching I'd really like to meet him! You have to take advantage of these key moments!
Then we went scootering and enjoyed the rest of the afternoon and tonight we watched Harry POTTER.
Tomorrow shouldn't be too bad. A Spinal in the morning first thing.. so no breakfast. Then three different chemotherapy medications to follow. Hope to be out of there by noon.
One of the chemo medications makes me super sick, so we're trying a new anti nausea drug that's made from marijuana, I hear it's a plant that makes people super silly! I took it tonight and it made me a little crazy!! Fun though! I also start steriods again tomorrow which mean cooking cooking cooking for mom! They make me so hungry! Last time I ate an entire roasted chicken, mashed potatoes and gravy and a whole can of corn! I even used to wake up in the night and ask mom to make me an omelet!.. and SHE DID! The intra muscular injections start again on Friday.. those are super terrible... 12 more to go! We count through them and it takes about 18 seconds on average. It's the worst 18 seconds of my day.. but it'll make me better!
Hope you all can catch the quick clip on CBC tonight and if not try to tune in to SHAW on the weekend. I hope to get a copy of it, and I'll add it to the blog soon.
Thanks for reading! Welcome to the final stage people! Wish me luck it's going to be a tough one! .... but nothing we can't handle!
xoxo
Aiden!
Thursday, October 1, 2009
Thursday October 1st
Hello Everyone!
Just thought I'd bring you up to speed on life and time off! We've been crazy busy enjoying life here. We've been up in the RCMP helicopter, we've been to playland, parks, school, puddle jumping, etc.. it's been fantastic!
We met up with Annie and Ron tonight for dinner, thank you for everything it was great to see you!! Renee is bringing Ty and Carson down this weekend and I'm so excited to see my friends. We're going to scooter around the Sea Wall, the weather is suppose to be perfect.. can't wait!!
We had our meeting about the next round and it's going to be long and tough, but it's the last one! The last one! Did you hear me THE LAST ONE!
So, on that note... mom is asking PLEASE no more "presents" be sent down for me or Addison. We're in the learning curve back to reality. Thank you to everyone for all you've given to me and to my family over this past 5 months. It's been amazing, unbelievable and fantastic.. however, it's time that we get back to "normal life" it's important for all of us, especially for me.
So, we're asking instead of gifts for us, we would like each and every one of you, if able, to give blood. Mom and I will be on Global TV news on Tuesday October 6 trying to encourage people to give blood over the Thanksgiving weekend. I have had 10 blood transfusions already and probably 2-3 more to come this round. So, please, if you're able, GIVE BLOOD FOR THANKSGIVING.
Hope this finds you all well. Thank you to everyone for reading.
xoxo
Aiden
Just thought I'd bring you up to speed on life and time off! We've been crazy busy enjoying life here. We've been up in the RCMP helicopter, we've been to playland, parks, school, puddle jumping, etc.. it's been fantastic!
We met up with Annie and Ron tonight for dinner, thank you for everything it was great to see you!! Renee is bringing Ty and Carson down this weekend and I'm so excited to see my friends. We're going to scooter around the Sea Wall, the weather is suppose to be perfect.. can't wait!!
We had our meeting about the next round and it's going to be long and tough, but it's the last one! The last one! Did you hear me THE LAST ONE!
So, on that note... mom is asking PLEASE no more "presents" be sent down for me or Addison. We're in the learning curve back to reality. Thank you to everyone for all you've given to me and to my family over this past 5 months. It's been amazing, unbelievable and fantastic.. however, it's time that we get back to "normal life" it's important for all of us, especially for me.
So, we're asking instead of gifts for us, we would like each and every one of you, if able, to give blood. Mom and I will be on Global TV news on Tuesday October 6 trying to encourage people to give blood over the Thanksgiving weekend. I have had 10 blood transfusions already and probably 2-3 more to come this round. So, please, if you're able, GIVE BLOOD FOR THANKSGIVING.
Hope this finds you all well. Thank you to everyone for reading.
xoxo
Aiden
Monday, September 21, 2009
Monday Sept 21st
Hello everyone..
Just a quick note to let you all know we're enjoying the start of our 3 WEEKS OFF and can't believe the weather that's coming for us! This is amazing!
My counts were so good today we spent the afternoon at Science World with Dad and then when mom picked us up we went to the hockey game! It was so fun! Addy and I played "Find Fin" (the mascot) and we ate cotton candy and popcorn.. the game went pretty fast and the Canucks won 2 to 0. However, when I was lying in bed I thought I heard the hockey game on TV.... must be my mistake... we wouldn't just stay for one period... would we?
Mom couldn't go to work this week as the H1N1 virus reared it's ugly head at HQ. So, she caught up with an old friend from high school, Jodi. I've never met her, but I like her already! She sends Bionicles! Thanks Jodi!! Thanks for the gifts for Addy and mom too! Mom had a great visit!
Then The Campbell's sent a care package down! The favorite is the book for mom with our pictures on it, and the Hurt Free Antiseptic Wash! Because it's really Hurt Free and it lets me be a boy! Thank you for everything you sent xo
Then just to top off the night!!!.. when we get home from the game there is a package under the door addressed to Mom from Papa. I had mentioned to him... if he wouldn't mind... he could save his Canadian Tire money for me. Well Papa not only saved his, he recruited his buddies! I'm RICH! I'm RICH! Thank you Papa, Thank you Mr. Epp, and Thank you Mr. Wardle!!!! I'm going shopping! I am thinking of getting a new lacrosse stick, and maybe some road hockey goalie equipment!
It's been a great start to these 3 weeks off.. and we're not even thinking about what's to come. Enjoying the time together and this amazing weather.
We hope this finds you all well. Thank you for reading. I have to get to bed and up for school in the morning.
G'night
Aiden!
Just a quick note to let you all know we're enjoying the start of our 3 WEEKS OFF and can't believe the weather that's coming for us! This is amazing!
My counts were so good today we spent the afternoon at Science World with Dad and then when mom picked us up we went to the hockey game! It was so fun! Addy and I played "Find Fin" (the mascot) and we ate cotton candy and popcorn.. the game went pretty fast and the Canucks won 2 to 0. However, when I was lying in bed I thought I heard the hockey game on TV.... must be my mistake... we wouldn't just stay for one period... would we?
Mom couldn't go to work this week as the H1N1 virus reared it's ugly head at HQ. So, she caught up with an old friend from high school, Jodi. I've never met her, but I like her already! She sends Bionicles! Thanks Jodi!! Thanks for the gifts for Addy and mom too! Mom had a great visit!
Then The Campbell's sent a care package down! The favorite is the book for mom with our pictures on it, and the Hurt Free Antiseptic Wash! Because it's really Hurt Free and it lets me be a boy! Thank you for everything you sent xo
Then just to top off the night!!!.. when we get home from the game there is a package under the door addressed to Mom from Papa. I had mentioned to him... if he wouldn't mind... he could save his Canadian Tire money for me. Well Papa not only saved his, he recruited his buddies! I'm RICH! I'm RICH! Thank you Papa, Thank you Mr. Epp, and Thank you Mr. Wardle!!!! I'm going shopping! I am thinking of getting a new lacrosse stick, and maybe some road hockey goalie equipment!
It's been a great start to these 3 weeks off.. and we're not even thinking about what's to come. Enjoying the time together and this amazing weather.
We hope this finds you all well. Thank you for reading. I have to get to bed and up for school in the morning.
G'night
Aiden!
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